drug interaction checkers should include drug drugs (harm reduction!!!) and why and how they interact and stuff about chemistry
and drug interactions listed on pill bottles and stuff don’t even say severity
“don’t mix with grapefruit juice” will i have a headache or will i die this is an important distinction
As someone who went off a medication almost 2 weeks ago that is rumored to stay in my system for up to a month: I would love to know when I can eat a grapefruit and be a normal person entitled to do normal things again.
The peasants are too stupid and ignorant to understand. It’s for your own good. Trust in the experts. The experts know better than you. This information is above your clearance level, infrared. Informed consent is a myth. The System is your friend. Freedom is slavery.
Partially informed consent, with partial awareness of the gaps in one’s informedness, is the way of the world. Ask anyone who’s used a program with a license agreement.
(I have taken a 2-hour online training course in research ethics, and I get a fair amount of intuitions about consent from there, tbh. Not all of them, of course.)
I can see how the experts could handle this on their own, if they would just listen to each other. A system which accidentally leaves a diagnostic report about me in my folder in 5th grade is not a system that has earned the right to snatch it away when I foolishly report my concerns. (It did anyway, of course. I don’t even blame the person who took the file back. I still haven’t seen the thing, I still don’t know my blood type, and even the study I thought I agreed to participate in on the condition that I get another psych report only would send one to my parents, who chose to withold it from me. [1])
I trusted the person who told me she had a master’s degree in nutrition, and then found I was anemic only years later.
The experts may be wise, but they lack the time to collaborate and to compile their wisdom for each individual case. And I want a grapefruit as soon as I can safely have one, and my medical records as soon as I can sound out words and use a dictionary, damnit.
[1] Say what you will about religious leaders being deceptive liars, at least they tend to believe what they’re saying and not purposely hide things.
This really looks like a good trade off to me. Like, if you gave me my medical reports, I’d know not to over interpret them, sticks to just the things I definitely understand, realize that hard limits are hard limits, treat probabilistic things sensibly, etc.
If you did that with, say, everyone in my high school class, >50% of them would fuck something up. (Well, maybe. It’s also possible that most of them would hand them straight to me and/or Arion and ask us to interpret them :p ).
I think it’s a better world if none of us get them than all of us, and I see some fairly major hurdles to selecting the right people who can see them.You can fuck things up just as easily without a medical report as with. At least if given the reports, their fuck-ups will be slightly more informed than otherwise.
The obvious solution would be for the information to be available somewhere where people who want it with informed consent can find all the info, and have simple lies to those who can’t handle the complexity. The wrong solution is to not let people access relevant things. I can’t even count the times I’ve had to correct my doctor or handhold them as little more than a rubberstamp.
2 months ago · tagged #my access to information is not negotiable · 71 notes · source: nniihilsupernum · .permalink